Ashley Cain has revealed that his eight-month-old daughter Azaylia could have just days to live amid her leukaemia battle.
The reality star, 30, took to Instagram on Thursday where he shared a heartbreaking video in which he explained what was happening, revealing to fans that they’re taking their little girl back home from hospital to make as comfortable as possible.
Ashley revealed that little Azaylia cannot fly to Singapore for treatment as doctors have discovered tumours throughout her body: in her stomach, her spleen and her kidneys, in addition to tumours in her brain. And sadly, the chemotherapy isn’t working.
Devastating: Ashley Cain, 30, has revealed that his eight-month-old daughter Azaylia could have just days to live amid her leukaemia battle
Speaking outside of the hospital, the TV star told his followers: ‘Where do I start? Where do I start? A lot has happened. A whole lot. Too much to write in a caption, too much to explain in a picture, so I thought I’d do a video.
‘So last week we had the bone marrow test and the lumber puncture and bloods taken to send to Singapore in the hope that they could create a CAR T therapy to save Azaylia’s life.
‘Then we had to have a CT scan on her head and the results came back the next day, saying that Azaylia’s got two very big tumours on her brain.
‘They also said that the intrathecal treatment that is usually given to treat leukemia in the spine or the brain will not be available, because she has too much pressure with these tumours. And if they tried to even go through the spinal tap it would kill her. At that point, obviously, our world came down.
Family: The reality star took to Instagram on Thursday where he shared a heartbreaking video in which he explained what was happening (Pictured with Azaylia’s mum Safiyya Vorajee)
Heartbreaking: Ashley revealed that little Azaylia cannot fly to Singapore for treatment as doctors have discovered tumours throughout her body
‘Because obviously, the current chemotherapy that we were doing was for her blood, not the tumours in her brain.
‘Consultants said that they think she’s only got one, two days to live, and it could even be that night. So, we took Azaylia home with the palliative care team and stuff.
‘It was scary. You walk into your little daughter’s room and there’s big oxygen tanks and stuff like that and it was horrible.
‘We took her home. She was on high levels of pain relief and we tried to enjoy every little bit we could, but it was tough. We got through the first night, we got through the second night, but we noticed that Azaylia wasn’t really here properly.
‘As a parental instinct, I told my girlfriend, I said: “Let’s take her off her pain relief”. So we took her off the pain relief and the next morning she was as bright as a button, she had her sharpness back, she was responding to everything.
Poor baby: Doctors have found tumours in her stomach, her spleen and her kidneys, in addition to tumours in her brain. And sadly, the chemotherapy isn’t working
‘And we sat there, and we thought: “this disease is not killing our daughter. We need to do everything that we can do to save this girl’s life.”
‘And so I rang up the consultant at hospital and said: “We’re coming back in, we’re carrying on with treatment and we’re getting her to Singapore.”
Ashley said he told consultants in hospital that he has always been a fighter and always will be, adding: ‘My daughter is a product of me: through nature, via nurture. That means she’ll be a fighter too.’
The TV star touched on how some parents might be more comfortable at home with their child, but explained that it would ‘break him’ to stay at home knowing his daughter is dying and he’s not doing anything about it.
Little fighter: Ashley said he told consultants: ‘My daughter is a product of me: through nature, via nurture. That means she’ll be a fighter too’
The father-of-one continued relaying his conversation with doctors, explaining that he told them: ‘Azaylia had one in four hundred trillion chance of being Azaylia, and you only get one chance at life…
‘So we, I are gonna do everything we possibly can do preserve hers, ’cause when you’re gone, you’re gone… But it’s how you wanna be remembered when you’re gone.
‘She’s fought a hard tough fight the whole way through, so I wanna honour that and give her the best chance of survival.’
Ashley then told his followers that they took Azaylia back into hospital and were exploring treatment options.
He said: ‘We’ve been back in hospital the last three four days. We’ve been pushing, fighting for options and we made steps forwards.’
‘She’s currently on the drug that we fought to get. We’re talking about potential options of radiotherapy to target the tumours in her head.
‘They don’t usually get radiotherapy to children under three but they were potentially willing to make an exception potentially, after talks.’
After taking a deep breath, Ashley explained that they had an ultrasound scan yesterday and the results came back today revealing that they found tumours throughout her body.
Fighter! ‘She’s fought a hard tough fight the whole way through, so I wanna honour that and give her the best chance of survival’ said Ashley
Ashley told fans: ‘They found tumours in her stomach her spleen her kidneys, as well as the tumours in her brain, and the chemotherapy’s not working.
‘Her disease is that aggressive that nothing they are doing… Nothing’s working.
‘And then, to make it worse, the consultants got an email from Singapore, and because Azaylia’s literally one in a trillion – she literally is she’s so special, she’s one in a trillion – but unfortunately so is her disease. In Singapore they can’t create a CAR T for her leukemia.
Holding back tears, the doting dad continued: ‘So that means we’re going back home. We’re going back home and, we’re gonna try and make our baby as comfortable as possible…
‘And we’re gonna have as much fun as we can with her as possible.
‘And I thought that… When you hear of all the other kids in the hospital they just wanna be at home, but azaylia doesn’t have a voice yet. I think if she had a voice, she’d wanna be at home to. So we’re gonna take her home.’
Ashley told fans that he forced himself and his partner to get up, get dressed, eat and clean up, adding: ‘We’re gonna smile, we’re gonna be strong and we’re gonna go out in honour.
At the end of the harrowing video, while on the verge of weeping the reality star said: ‘She’s had a tough, tough life. From eight weeks old she’d been in hospital having chemotherapy, operations, transplants…
‘And I feel like, for the last part of her life I just want to take her home. See her like a baby and give her the best rest of her life that we can give her. And that’s it.
Champ! ‘She’s had a tough, tough life. From eight weeks old she’d been in hospital having chemotherapy, operations, transplants…’ said Ashley of his incredible little girl
Ashley took a moment to collect himself, and then confessed: ‘I’ve been strong the whole way through this, but this last week I’ve been numb… Numb to the core.
‘I’ve been upset, I’ve been sad, I’ve been depressed, I’ve been heartbroken. Some days I don’t even know where I am but I think right about now I’ve got to step up more than ever and be stronger than I’ve been the whole time, because I’m doing it for her.
‘She needs to see her daddy smiling, she needs to see her mummy smiling. And that’s it. Thank you for all the love and support guys, honestly. I’m gonna go back into hospital to take my baby home.’
The media personality and his partner Safiyya Vorajee recently raised more than £1.5 million to fund a trip to Singapore for potentially life-saving transplant, but she was being treated in the UK during the interim.
Treatment: Last month, Ashley revealed that Azaylia would be required to undergo another round of chemotherapy amid her battle with leukaemia
At the end of March, Ashley revealed that his daughter Azaylia would be required to undergo another round of chemotherapy amid her battle with leukaemia.
And in a heartbreaking update, Ashley revealed that doctors have found ‘blasts of leukaemia forming in her cerebrospinal fluid’ – forcing yet more chemo for his daughter.
Taking to Instagram to share a snap of himself with his daughter, Ashley wrote: ‘Azaylia had to go into theatre yesterday, for a bone marrow test to read her leukaemia count, plus, a lumber puncture to extract samples to send off to Singapore.
‘After that, doctors had to take 60ml of blood from her followed by a 4 hour blood transfusion. Later, she had chemotherapy with two separate drugs: Azacitidine and the drug we’ve been working tirelessly to get hold of, Venetoclax.
‘That was a tough enough because of Azaylia’s pain and discomfort from the multiple procedures. Until we got told by consultants, that they had found blasts of leukaemia forming in her Cerebrospinal fluid, which can result in it finding the brain!’
He explained: ‘This now means that Azaylia will now have to have another form of chemotherapy intrathecally, through the spinal tap to attack the leukaemia and protect her brain.
Update: In an update on Wednesday, Ashley revealed that doctors have found ‘blasts of leukaemia forming in her cerebrospinal fluid’ – forcing yet more chemo for his daughter
‘This means today she will be having a CT scan on her head to make sure we can go through with this intrathecal procedure tomorrow.’
Touching on the strain of the experience on the family, he concluded: ‘With 3 hours sleep in 2 days, the reality is that, there are no days off on this journey, no time out periods and no single second without worry or fear.
‘If you asked me a year ago, I would’ve never imagined how strong I could or would have to be. That being said, you never really know how strong you are, until being strong is your only option. ❤️’
A day before, his partner Safiyya Vorajee revealed their daughter Azaylia is ‘in a lot of pain’ ahead of her planned treatment in Singapore.
Upsetting: Ashley’s partner Safiyya Vorajee has revealed their daughter Azaylia is ‘in a lot of pain’ ahead of her potentially lifesaving treatment in Singapore
Keeping her followers updated on their journey, Safiyya detailed the blood transfusion and surgery Azaylia underwent on Tuesday.
Addressing her followers from the hospital, Safiyya explained: ‘We’ve got a heavy morning today, we are getting a bone marrow test done and then Azaylia needs 60ml of blood taken from her.
‘She needs to have a blood transfusion so that they can send the blood over to Singapore.
‘She’s very swollen this morning, she’s on lots of fluid as that keeps the leukaemia from sticking.’
Determined: Safiyaa and partner Ashley Cain recently raised more than £1.5 million to fund the trip but she is still being treated in the UK during the interim
Speaking about the emotional toll it has taken on her, Safiyya continued: ‘Watching your daughter being put to sleep, again, really pulls another level of heartstrings.
‘These days feel so long and tough, but you’d do anything for your child – you don’t care about how you are yourself.
‘So many people ask how are you feeling, and we have one destination and that is to get to Singapore and get through this.’
Thankfully, the blood transfusion and operation went smoothly, with Safiyya later updating fans: ‘The procedures are all done and we are currently on a blood transfusion. Azaylia has recovered, she had to have blood taken from her.
Update: Keeping her followers updated on their journey, Safiyya detailed the blood transfusion and surgery Azaylia underwent on Tuesday
’60ml can leave you very anemic and your blood pressure and heart rate can go anywhere while blood’s being taken from your body but luckily Azaylia was very stable.’
She then wrote: ‘What a tough day she’s had, bless her. She’s been in a lot of pain today.’
While Ashley shared a clip of his little girl captioned: ‘The amount this little girl has battled through today.’
He later added: ‘One hour sleep with this little one last night. She went through the whole lot of procedures yesterday and she’s really feeling it.
Heartbreaking: Ashley later shared a clip of his little girl in hospital captioned, ‘The amount this little girl has battled through today’
‘Three hours sleep in the last two days. There are no days off or times out on this journey. We’re going to get you across that line baby’.
It comes after Ashley revealed pharmaceutical companies are not releasing the life-saving drugs needed to beat his daughter Azaylia’s leukemia battle.
Ashley, whose baby girl is currently undergoing her fourth round of chemotherapy, took to Instagram on Sunday to admit he’s in ‘heavy talks’ with consultants and doctors in an attempt to change the businesses’ decision.
The reality star said: ‘We found out today that one of the essential drugs we need tomorrow to bring her leukemia counts down and get her into remission is not being released by the pharmaceutical companies.
Update: The following morning, Ashley revealed it had been a sleepless night for all as Azaylia recovered, with the EOTB star promising to get his daughter ‘across the line’
‘Not only today have I been looking after Azaylia, but going through heavy talks with consultants, doctors and the companies themselves to try and get this essential drug that Azaylia needs.’
The media personality had asked fans for help in donating earlier in the weekend, explaining the treatment his daughter needs is only available in Singapore.
As of Wednesday, the total of his fundraiser for his seven-month-old’s treatment reached £1.5million, following donations from Love Island’s Molly-Mae Hague and Maura Higgins.
Ashley penned a detailed account of Azaylia’s health battle on his GoFundMe page and said that any extra funds the couple receive will be donated to other families in a similar situation to them.
According to the NHS, it is a ‘highly complex and potentially risky treatment’ but has been shown in trials to cure some patients when other treatments have failed.
Fighting for her: Azaylia was diagnosed with an aggressive form of leukaemia when she was just two months old and her parents have fought to save her life
Azaylia was diagnosed with an aggressive form of leukaemia when she was just two months old.
Ashley said he has spent the first seven months of fatherhood under Covid-19 restrictions in hospital as his daughter fought the cancer.
Doctors told the TV star and his partner Safiyya that chemotherapy would not be enough to cure Azaylia.
What are the symptoms of leukaemia in children?
Fatigue and pale skin – this is because leukaemia can cause anaemia which makes a child feel weak, tired and light-headed.
Infections and fever – children with leukaemia lack normal white blood cells which would normally help fight infection.
Rash – children may have small, dark spots that look like common rashes if the leukemia cells spread to the skin
Easy bruising or bleeding – this includes frequent nosebleeds, bleeding gums and bleeding a lot from small cuts.
Bone or joint pain – this is caused by a build up of leukaemia cells near the surface of the bone or inside the joint.
Swelling of the abdomen – leukaemia cells may collect in the liver and spleen causing them to enlarge.
Loss of appetite and weight loss – if the spleen and liver swell, they can press against the stomach causing loss of appetite.
Swollen lymph nodes – some leukaemias spread to the lymph nodes causing them to swell.
Source: American Cancer Society